Employees at the National Cancer Institute, which is part of the National Institutes of Health, received internal guidance last week to flag manuscripts, presentations or other communications for scrutiny if they addressed “controversial, high profile, or sensitive” topics. Among the 23 hot-button issues, according to internal records reviewed by ProPublica: vaccines, fluoride, peanut allergies, autism.
While it’s not uncommon for the cancer institute to outline a couple of administration priorities, the scope and scale of the list is unprecedented and highly unusual, said six employees who spoke on the condition of anonymity because they were not authorized to comment publicly. All materials must be reviewed by an institute “clearance team,” according to the records, and could be examined by officials at the NIH or its umbrella agency, the U.S. Department of Health and Human Services.
Staffers and experts worried that the directive would delay or halt the publication of research. “This is micromanagement at the highest level,” said Dr. Georges C. Benjamin, executive director of the American Public Health Association.
The list touches on the personal priorities of HHS Secretary Robert F. Kennedy Jr., a longtime anti-vaccine activist who has repeatedly promoted medical conspiracy theories and false claims. He has advanced the idea that rising rates of autism are linked to vaccines, a claim that has been debunked by hundreds of scientific studies. He has also suggested that aluminum in vaccines is responsible for childhood allergies (his son reportedly is severely allergic to peanuts). And he has claimed that water fluoridation — which the Centers for Disease Control and Prevention has called “one of the 10 greatest public health achievements of the 20th century” — is an “industrial waste.”
In confirmation hearings in January, Kennedy said that he was not “anti-vaccine,” and that as secretary, he would not discourage people from getting immunized for measles or polio, but he dodged questions about the link between autism and vaccines.
Another term on the list, “cancer moonshot,” refers to a program launched by President Barack Obama in 2016. It was a priority of the Biden administration, which intended for the program to cut the nation’s cancer death rate by at least half and prevent more than 4 million deaths.
The list is “an unusual mix of words that are tied to activities that this administration has been at war with — like equity, but also words that they purport to be in favor of doing something about, like ultraprocessed food,” Tracey Woodruff, director of the Program on Reproductive Health and the Environment at the University of California, San Francisco, said in an email.
The guidance states that staffers “do not need to share content describing the routine conduct of science if it will not get major media attention, is not controversial or sensitive, and does not touch on an administration priority.”
A longtime senior employee at the institute said that the directive was circulated by the institute’s communications team, and the content was not discussed at the leadership level. It is not clear in which exact office the directive originated. The NCI, NIH and HHS did not respond to ProPublica’s emailed questions. (The existence of the list was first revealed in social media posts on Friday.)
Health and research experts told ProPublica they feared the chilling effect of the new guidance. Not only might it lead to a lengthier and more complex clearance process, it may also cause researchers to censor their work out of fear or deference to the administration’s priorities.
“This is real interference in the scientific process,” said Linda Birnbaum, a former director of the National Institute of Environmental Health Sciences who served as a federal scientist for four decades. The list, she said, “just seems like Big Brother intimidation.”
During the first two months of Donald Trump’s second presidency, his administration has slashed funding for research institutions and stalled the NIH’s grant application process.The guidance states that staffers “do not need to share content describing the routine conduct of science if it will not get major media attention, is not controversial or sensitive, and does not touch on an administration priority.”
Kennedy has suggested that hundreds of NIH staffers should be fired and said that the institute should deprioritize infectious diseases like COVID-19 and shift its focus to chronic diseases, such as diabetes and obesity.
Obesity is on the NCI’s new list, as are infectious diseases including COVID-19, bird flu and measles.
The “focus on bird flu and covid is concerning,” Woodruff wrote, because “not being transparent with the public about infectious diseases will not stop them or make them go away and could make them worse.”
We’re not backing down in the face of Trump’s threats.
As Donald Trump is inaugurated a second time, independent media organizations are faced with urgent mandates: Tell the truth more loudly than ever before. Do that work even as our standard modes of distribution (such as social media platforms) are being manipulated and curtailed by forces of fascist repression and ruthless capitalism. Do that work even as journalism and journalists face targeted attacks, including from the government itself. And do that work in community, never forgetting that we’re not shouting into a faceless void – we’re reaching out to real people amid a life-threatening political climate.
Our task is formidable, and it requires us to ground ourselves in our principles, remind ourselves of our utility, dig in and commit.
As a dizzying number of corporate news organizations – either through need or greed – rush to implement new ways to further monetize their content, and others acquiesce to Trump’s wishes, now is a time for movement media-makers to double down on community-first models.
At Truthout, we are reaffirming our commitments on this front: We won’t run ads or have a paywall because we believe that everyone should have access to information, and that access should exist without barriers and free of distractions from craven corporate interests. We recognize the implications for democracy when information-seekers click a link only to find the article trapped behind a paywall or buried on a page with dozens of invasive ads. The laws of capitalism dictate an unending increase in monetization, and much of the media simply follows those laws. Truthout and many of our peers are dedicating ourselves to following other paths – a commitment which feels vital in a moment when corporations are evermore overtly embedded in government.
Over 80 percent of Truthout‘s funding comes from small individual donations from our community of readers, and the remaining 20 percent comes from a handful of social justice-oriented foundations. Over a third of our total budget is supported by recurring monthly donors, many of whom give because they want to help us keep Truthout barrier-free for everyone.
You can help by giving today during our fundraiser. We have until midnight tonight to add 132 new monthly donors. Whether you can make a small monthly donation or a larger gift, Truthout only works with your support.